Huntington’s Disease

I was told a couple of weeks ago that Huntington’s symptoms have started. I have a CAG of 43 and really never thought I would start having symptoms.  I have such a severe case of fibromyalgia I thought Jesus would spare me from the symptoms of Huntington’s. I also have severe sinus infections that last for months. I can’t take any antibiotics so I just suffer.

Huntington’s is a mix of Alzheimer’s, Parkinsons and schizophrenia.  Symptoms show up differently with each person.  The person could have live 12 or more years after the symptoms start.

I decided to keep going to school and use the rest of my GI Bill when I got a professor who gave me a 38 out of 200 points on an assignment. I couldn’t believe it!  I mean I know my writing is not the best which is why I hesitated writing a blog. I dropped the class which was a cost to me.  I’m not even sure I want to take another class.  I feel the classes stress me out so much because I never know how the professor is going to grade.

I’m feeling lost.  I don’t ever want to blog or do anything.

I know Jesus has a plan I’m just not sure what it is.

#huntingtondisease #huntington #lost #helpmejesus

afterglow avian backlit birds
Photo by luizclas on


5 thoughts on “Huntington’s Disease”

  1. thank you for your transparency. My heart goes out to you sweet girl. I’m dealing with some neurological/cognitive issues myself, and I understand the process of trying to grasp what’s happening, and coming to terms with it, while trusting that God has a plan. It requires a level of total submission that I’m new to. Many blessings to you. Just know that you are not alone.

    Liked by 1 person

  2. I’m glad you’re writing about it! I can’t imagine how helpless it must feel! Keep trusting and reaching out to others. Sorry I missed your fb message- I rather avoid fb!!


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